Six week update

Woo it’s been a month and a half! Yesterday was my first “good” day since I moved back home. I wasn’t super depressed! In fact, I felt motivated to prepare my own food and eat it! It’s a big deal, as sad as it may be. I gotta celebrate any and all victories! And I slept really well yesterday- so not last night, but the night before. I went to sleep before midnight, and never woke up! Last night however, I woke up couple times and was itchy. The saying one step forward, two steps back is really true with tsw. No matter, I will still celebrate because I feel better than two days ago! I had a flare and was the most uncomfortable I had been recently. I couldn’t sleep, spent four hours in the tub, was miserable when I came out, itchy, ooze, stressed and depressed mess. There were tiny vesicles everywhere, and one light scratch was all it took for the top layer to completely break and start oozing. It’s ridiculous – my epithelial layer’s integrity is completely compromised. My face feels like thick sandpaper. A lot of that is starting to flake over though, I’m hoping I will have at least few days of respite before the next flare, but we shall see!

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