Month 18 and 18.5 update

Month 18 – Feb 23 2015:
Sigh. I wish I had good news so badly, but alas, my skin keeps getting worse. I am itchy and dry everywhere. During the day itch isn’t so bad but during nights it becomes really bad. In addition I can’t fall asleep at night and I am oozey. My semester starts in a week in a different country (thank God I at least speak the language). I am trying to stay positive, but on the sleepless nights I find myself overwhelmed and terrified.

I’ll be all alone at Korea – no parents or husband. I don’t even have a place to live yet… My skin hasn’t been this bad in over a year. Open wounds have returned. Imsomnia, chills, oozing, itch fits all have returned. At least I don’t have nerve pain.

I will still fight hard to stay positive. And I think I’ll succeed. But tonight I seem to be at a low point. I have 8 hr flight ahead of me- the last 5 hr dried out not only only the skin but the mucus membranes as well. I can’t even take lots of antihistamines because they make my teeth chip.

I will stay the course and stay off steroids… But I totally understand why some go back to it.

February 22/3 2015- after day in bali
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Shirt I wore in bali

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Shirt I wore in bali

Also early February, I was really concerned because I got blisters on my hands and feet. Throughout the whole the my feet and hands were spared of symptoms so it was alarming. Thankfully it went away and stayed away.

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Progress of worsening skin – look at my neck. Pic in order of older to newer
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I think my flare peaked a day or two after this picture then at Bali.
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It started to get a bit better after I came back from camping.

Month 18.5 – March 7th 2015

When I wrote the 18month update, I was in a hopeless place. I did enjoy Bali though, but that humid and heat was bad bad bad for my skin.

So as expected the flight was pretty bad. I was really red and irritated itchy and sleep was hard, etc.

However
As I stayed at very cold and dry Korea, my skin healed up pretty nicely. I sleep well at night, I’m not too itchy, and skin is dry but is starting to adjust to the dryness of Korea (still no moisturizer!).

The change was pretty fast- makes me think not everyone does well in the Sun/summer/sand/salt. I got worse and worse while I went camping by the sea and attempted to stay in cold salt water despite the pain. In the cold (around just below freezing) my skin got noticeably better everyday – so much so that within 2 days my friend said “oh your skin looks so much better now.”

I’m not too worried anymore about studying. I am still kind of flaky but much better than how I was. Still not 100% but I think I’ll get there in time. It’s just a pity that my skin flares seem to align with whenever I am with my husband. Our running joke is that I am allergic to him… Hopefully not!

Below pictures were taken March 7 2015
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I am enjoying Korea though despite the hectic schedule till now. Some pictures from Jeju island (March 27-29 2015, chronologically)

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So thankful skin improved! Happy healing everybody! Fight the good fight.

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7 thoughts on “Month 18 and 18.5 update

  1. Hello love, sorry to see you going through another pesky flare!! But I’m happy to see you keeping your spirits up. I was seriously disappointed we couldn’t do a catch up in Melb but maybe when my flare ends I’ll come to see you! <3

    • Aww im sorry youre still going through the flare! Im thankfully doing much bettee i would say the main flare died dowj its just remnants of it all… When i look 100% normal again thats when ill declare 4th flare to be over.

      But anyway, when you say youll come see me does that mean youll come to korea? Haha cuz thats where im at!

  2. Oh, Sweetie, you are so amazing! *hugs you* I’m truly sorry about that bad flare up, and will keep praying that you will heal up soon. I want ALL of this to hurry and go away. :/ You are so precious. I just pray for your healing, and your amazing attitude, and for your and your hubby’s strength and encouragement through this. I am so very thankful that he is so wonderful and supportive to and with you. Bless him. Bless you, too, Sweetie! Love you!

    *more hugs*
    Ursie

    • Aw Urs, as always you are such an encouragement! Thanks so much for all your prayers and love, it means so much to me!

      I am very thankful for my husband as well! Bless him indeed :) Thanks again for caring so much for my well being <3

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