Almost 36month!

Hello!

I am so sorry Ive been gone so long. Honestly, I am not busy at all, just lazy haha. My skin is still doing well. It is kind of allergic to the sun, and its very sunny here, so sometimes I get minor rahes. Its not even itchy so I don’t mind. Body is still moisturizer free 99.99% of time (I cant remember the last time but Im sure it has happened) face I sometimes use moisturizer if I wash my face with face wash. Usually it’s water and leave alone method for me. Diet is still gf, lf, try to stay away from sugar.

Just a quick update to let you guys know how I am doing. Here are some photos from life. Remember, pics or it didn’t happen :D But really, I would be wary of claims of people being healed if there are no photos to back it up.

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Times square is best 7 in the morning lulz.
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Before I started juice cleanse…. i will post more about it, but the tl;dr is NotWorthIt!!!

That’s it for now! Long update coming for 3 yr mark! Crossing my fingers the anniversary flare doesnt happen! I hope you are feeling better.

Month 22.5 update!

I’m not sure what happened but this post got completely erased the first time around… so here we go again!

Since I am updating this on July 6th, I can talk about the plane ride as well.

Unfortunately, my skin underwent a minor flare for threeish weeks. or two. something like that. And since about two/three weeks ago, it’s been on recovering mode. The flare itself was pretty minor – I’ve been itchy, no oozing, sleep is fine, energy level were fine. Humidity, sweat and heat are enemies of my skin, and unfortunately, the weather is becoming increasingly humid and hot. For shame! But skin is continuing to recover. I’ve been attempting to be good about my diet again, since when I was at LA, I went a bit crazy with gluten and lactose consumption. To balance out, I’ve also drank lots of green juice. So far, skin seems to be doing ok.

The flight over was drying, but it was manageable. I lucked out and manage to have the entire row of seats to myself, so I slept for good 10 hours of the trip. That was wonderful. I am at a stage where I am beginning to think moisturizer will do more good than harm, when applied judiciously. I have a much better understanding of my skin, and a such, I can tell when my skin is dry, and need moisturizer, and when the skin is flaring.

Attached are few photos. Hope everybody is doing well!

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Month 17.5 – HUGE FLARE :(

Well, it was good as it lasted! What seems to be the break is over. It was insane how fast my skin got bad when it seemed like it took forever to heal. Within two days of posting the 17month update post, skin started to go down hill and hasn’t stopped. Yesterday I took a sulfur bath and right now I feel less inflamed and more dry. Perhaps it is helping. I don’t actually know.

I have a feeling I am allergic to cats and I was around one for about a week which did not help with my skin. I think. I don’t actually know. Its extremely frustrating why I flared again when I was doing so well, but all one can do is hope it will go away! It’s disappointing as I was excited to be with my husband when I was all healthy, but alas.

My skin is terrible. It is a full body flare, I am covered in hives all over my body. Arms, neck, scalp, and face are the worst but my torso, back, legs, and butt are bad as well. In addition, I have tiny blisters on my feet and hands which were never affected throughout the entire topical steroid withdrawal, so I am a bit worried. Skin that is not covered with hives are strong and moisturized, although unfortunately there aren’t too many of those. My neck, scalp, and behind my ears were oozing a bit, it seemed to have subsided now, but who knows. For now I will continue on with the sulfur baths and hope it helps.

Thankfully itch isn’t too bad. I definitely am a lot more itchier, but I can sleep through the night and itch is not all consuming. That is another confusing thing for me actually -I am not even itching that much but the skin seems to continue to get worse. Mind boggling this topical steroid withdrawal! 
Mentally I was pretty depressed for about a week and a half as I saw my skin go downhill. It was devastating to realize I had to suffer again and I was not, in fact, done with this shitty process. That said, I definitely have more energy now than I did during second and third flares… Which is weird because I think my skin is far far worse. Confusing. I am trying really hard to stay positive and happy. My husband is as supportive and loving and generally awesome as usual and for him I am trying really hard to remind myself of the blessings in my life and it is mostly working! It’s hard work to remain upbeat- don’t let anyone tell you otherwise. Chronic illness is a bitch and if it affects how you look, it’s a double bitch! But we still have control over how we feel and I am choosing to feel blessed and happy.

Pictures will come at 18 month update next week. Hope everyone is having a better skin day than I am!